1. Home
  2. Chat
  3. February is CHD Month (Congenital heart defect)

February is CHD Month (Congenital heart defect)

Other

I know this won't be important for a lot of people, especially with what's going on in the world, but February is CHD month. CHD stands for congenital heart defect and it affects 1 in 100 people.

A few people on here know this already but our son was born with a very complex heart condition, which we had no idea about until he was born. He had to be delivered by emergency c section and was rushed to the NICU. He needed to have emergency life saving surgery at less than 24 hours old. He was born with Transposition of the great arteries, VSD (a very large hole in his heart) and a muscle obstruction between the chambers of his heart. We were told that it was very rare to see all 3 conditions in one person. We had a tough 9 months between his 1st and 2nd life saving surgery, with lots of obstacles, tests, appointments and endless worry.

He had a 12 hour open heart surgery at 9 months and has thrived ever since.

CHD is something very close to mine and my families hearts. I didn't know anything about CHD until it happened to us.

I'm sharing this to make others aware of it and to let those that are going through it know that there is lots of support out there and that you do get through it.

MrsCraig
29 days ago
What do you think of this?
lilyflower
lilyflower29 days ago

MrsCraig I'm pleased to hear Master C is going well, he certainly had a lot of problems. It's also very hard for the family, knowing you can't physically do anything other than offer support for the parents. My cousins granddaughter spent most of her first 3 years in hospital as she needed a heart transplant, which she got but rejected, the second, the following year, she was so lucky, has been a success, she's now 10 🙂

Like
Reply
1
MrsCraig
MrsCraig
Original Poster
29 days ago

lilyflower he had a very tough start but he was a fighter from the beginning. My parents and in laws found it very difficult, they didn't know what to do to help, just being there was enough.

I'm so pleased that her 2nd transplant was successful and that she is doing well! It is just brilliant 😊

Like
Reply
1
PinkElephant26
PinkElephant2629 days ago

Aww Im so pleased your little one is doing well. I cant imagine what you went through as parents. I'll be honest...ive never heard of CHD but thank you for sharing! Best wishes to your special little boy.

Like
Reply
1
MrsCraig
MrsCraig
Original Poster
29 days ago

PinkElephant26 it was a very tough time, it completely changed us as people. We weren't expecting any of it as it wasn't picked up on any of the multiple scans I had, I had a difficult pregnancy.

Most people don't hear about CHD until it happens to someone they know, I didn't know about it till our son had it.

Thanks for the best wishes. He is a very happy wee boy, his heart condition just needs to be monitored now.

Like
Reply
PinkElephant26
PinkElephant2629 days ago

MrsCraig aww he sounds like a very brave boy. You would think something so serious would have been picked up on, i bet it was a huge shock too.

Like
Reply
1
MrsCraig
MrsCraig
Original Poster
29 days ago

PinkElephant26 it was a massive shock! Since we have had him the scanning technology has gotten a lot better and they are able to pick up on those things now, so hopefully other parents won't have the same shock that we did.

He is a very brave boy and he has never let it stop him from doing anything.

Like
Reply
PinkElephant26
PinkElephant2629 days ago

MrsCraig good on him!

Like
Reply
1
MrsCraig
MrsCraig
Original Poster
29 days ago

PinkElephant26 I would share a photo of him just after his surgery but it's not something you would want nor need to see but I am planning to take a photo of him every February with his braveheart bear to show just how far he has come.

Like
Reply
One of the UK's largest deal hunting communities

Join for free to get genuine deals, money saving advice and help from our friendly community

Kelsey, Tom
& Deepak
Founders
Founders of Latest Deals
We use cookies (e.g. personalisation, analytics, social media). Find out more.