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just been reading the pregnancy over 40 from a wee while back and got me thinking. this may be sensitive and would like to stress I mean no offense but would really value your thoughts regarding Down syndrome and associated conditions. Do you think its fair that we see Downs in particular as a disability when these individuals are living much longer independent lives than previous generations? Should parents to be be given a more positive or at least neutral opinion on raising a child with Downs?

OneeyedRaven
7 months ago
What do you think of this?
ClaireF1978
ClaireF19787 months ago

Well they are disabled and often need heart surgery. They have learning difficulties and need support from carers. I don't think we're yet at a stage where we can stop thinking. That's not to say that we shouldn't value them. Maybe it's more a case of embracing difference.

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OneeyedRaven
OneeyedRaven
Original Poster
7 months ago

ClaireF1978 no thats more what I was meaning as in I know they are classified disabled but why does that have to be everything a person is worth? at the end of the day its just how lucky we got being put together. so I was wondering why we speak negatively when maybe as you say we could be providing more balanced information to embrace these differences should parents to be wish- surely thats true informed choice?

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AgnesFaludi
AgnesFaludi7 months ago

I think we do not get enough information about Down syndrome an other conditions. They just do a test. Not sure that the factor grows with age. It is something to do with DNA...so genetics and not with age.

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ClaireF1978
ClaireF19787 months ago

It's the risk factor that increases with age. An older mum has older eggs and the chromosomes are less likely to separate evenly.

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AgnesFaludi
AgnesFaludi7 months ago

ClaireF1978 yeah but the risks are there even if u are 20....

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OneeyedRaven
OneeyedRaven
Original Poster
7 months ago

AgnesFaludi yes they are but I think ClaireF1978 was meaning is that we know that chromosomal issues which result in Downs increase as mums ages increases. I know that doesnt mean anything is certain whatever the age. I agree re info and I just feel its given in quite negative ways

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hspexy
hspexy7 months ago

Times have definitely changed - there was a time in the past that you’ll be ribbed for needing and wearing glasses, and thankfully people have seem more understanding about it now. I have met adults with Downs who seem no different from you or I, and indeed my own perceptions change from what I grew up with (there were always ‘special needs’ classes for kids in school back in the day)

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OneeyedRaven
OneeyedRaven
Original Poster
7 months ago

exactly hspexy maybe the way Downs is discussed needs to change. Thank you all for your comments it was really interesting xx

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SuzJ
SuzJ7 months ago

I'm an older mum and my daughter was born with a gastric condition she needed surgery for. 30% of kids with this particular condition have Downs so it's something we faced although it turned out she doesn't. I know very little about it despite having an aunt with the condition. Different generation I suppose, she must be in her 50s now but she grew up in a home away from her family and it wasn't something that ever really got talked about. When we did meet her her behaviour was something that always got apologised for which I never really understood because as a child I just knew that I liked her. I love that it's seen differently now; as it should be - so many positive role models now who have Downs - that excellent young man who spoke politically (apologies, name escapes me) - several Downs supermodels challenging normalised views of beauty, the actor in Corrie; all positive!

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